Monday was to be the day that I was to be discharged at least for afternoon leave but a few things happened that meant this could not be. Firstly the Hickman line that had developed a hole had to be replaced was going to take up most of the day with operations. The team chose not to replace the Hickman but rather change over to a PICC line. The PICC line is also a central catheter but runs from your tricep into the heart and is a slightly smaller tube.
It took about an hour to get the PICC line fitted fitted up. This is done with only a local anaesthetic and they push the line about 40 cms into the suitable vein.
But then I had to have the old Hickman line taken out. This is simply done by an experienced nurse pulling the tube from your chest, no anaesthetic just brute force! They then put a dressing on the hole. The Hickman central line had been in my body for total of 5 months so had not done too badly.
So day leave was off the agenda, i was not set for full discharge on Tuesday 30th January. This was after a month in hospital. and it felt very strange.
Emily from the Pharmacy spent and hour with us going through a small mountain of drugs that I would need to carefully consume each day. What has become clear is that the next 60 days are critical in the recovery process with visits to the hospital every second day for tests, checkups and top ups of blood products and Magnesium as required.
Walking out of hospital the first thing you notice is the strange smells. Even the car park smelt great to me!
So once at home it was a matter of unpacking and settling in again, I still don’t feel 100% and assume it will take a number of days for my body to adjust to my new life.