Wednesday was my first visit back to hospital as an outpatient and this was for blood tests and to see a doctor. All went well although the wait times at the hospital were something that I had almost forgotten about.
Thursday was a hospital free day spent at home with a few walks and catching up on some business matters, although with my Chemo brain at the moment I am certainly having trouble keeping concentration for more than 5 minutes or so.
The biggest issue I am having at present is lack of sleep. My routine is completely upside down and I can remember when I first came out of hospital back in Sept it was much the same. I struggle to get 4 hours sleep a night and on some only 2 or 3. This is not good as it leaves me in a complete fog the next day without the energy to do much.
Friday’s visit to the hospital was for more blood tests and my Day 30 Post Transplant bone marrow biopsy, which will see how well Tony’s Stem Cells have engrafted and if any leukemia cells are still present. The blood tests were out of the way early but as before there is a lot of waiting for the biopsy – about 1.5 hrs in fact.
This was a relatively painless operation with mild sedation and took about 30 minutes.
Following that I had another appointment with a doctor to check on the morning’s blood results (yes they can get them through very quickly – within 2 hours if needed). We discussed the lack of sleep and he gave me a strategy with some sleeping tablets to see if I can change my sleep pattern. I am still on 3 hospital visits a week for the next week but hopefully will move to just two a week after that.
In the meantime I am keeping up with exercise each day, drinking two litres of water each day and taking my 44 tablets each day. What a routine!