After a pretty good night (about 5 hrs broken sleep in between multiple blood tests, observations, toilet steps etc etc) the day started well.
Best shown by pictures:
- Managed to convince the Physio team to put a warning notice on the dangerous gym equipment!
- Finally got a Zimmer Frame
- Claire’s lovely Moroccan meatballs
- Pills glorious pills!
- Minestrone – homestyle sure beats hospital any day!
I have learnt a few interesting things with this Chemo business – they give you a massive cocktail of drugs. 2 major Chemo Drugs (as explained previously in HIDAC + 3) but there are the wide range of “Antis” – we have been writing this down each day and now have the “Anti-Board” which lists the anti-ulcers, anti nausea, antiviral etc.
At last count there were 5 different pills to take in any one day and up to 7 different IV Drugs – although this vary day by day. And on top of that there are up to 9 different “on demand” drugs such as cough medicine, and Allopuranol (for uric acid removal).
So on a not so good day you might be putting 21 different drugs through your body and of course the more volumous ones lead to bloating and a large fluid increase (still seeing up to 3-4 kgs extra in a day!)
But guess what the best drug so far I’ve found to lower temps and reduce pain is Panadol! 4 x per day and it keeps you sane!
- Dougall managed to find some old and new family snaps to liven up the room. The whiteboards collect the daily medical information (blood counts, procedures for the day, new drugs added to the cocktail etc etc). The Clock is an essential found by Claire – silent ticker!
- I’ve finally made old age – Zimmer frame and nappy!
- The nasty ugly ones are mine
- Lots of napping in between drugs and drugs
- And one benefit is the return to childhood of lemonade and other sweat treats – think jelly, custard, ice cream etc etc.
I can’t thank my darling wife enough for being (literally) by my side during the process. She’s been keeping one eye on me and the other on the medical staff, making sure everything runs as smoothly as possible.
This funny looking machine on is a platelet agitator which has been storing one of the many strange bags of liquid I’ve been putting through my body.
Having such a low platelet count means I’m constantly in danger of bleeding or bruising excessively from even the most minor injury. Had the first nosebleed today but thankfully it didn’t last too long.
The final prognosis from the Physio was “you’ve over done it” and it will take 3-4 days to get back to normal. No major damage just a bloody sore calf muscle.
If you have a nice pic of yourself and me/Jan I’d love to add it to my Glory wall so email it on to me or Jan.