Thursday and Friday have gone very well. I have been home both days and nothing out of the ordinary has occurred with my well-being. The HITH nurse has arrived around 9.00am on both days and has gone through the standard checks of blood pressure, oxygen levels, etc with the standard questions re pain, eating, drinking etc to check that everything is normal, prior to hooking me up to my antifungal drugs via a portable pump . This visit takes about an hour. The HITH nurse has 4 or 5 other visits for the day with me usually being the first one.
The rest of the days are generally filled with reading and recently doing a few handyman jobs around the apartment. We managed to walk to a nearby Bunnings today to purchase a few bits and pieces to fix a few things.
And of course each day I make sure I have enough time time to read the various emails from friends responding to my blog.
This is one aspect of my illness that was totally unexpected but greatly appreciated. I set the blog up to keep people informed of my progress in a timely fashion. The alternative was to try and respond to phone calls, texts and emails giving people similar information. To me this was going to be a huge workload for Jan (who was taking the calls) or frustration for me not being able to respond to all the messages. (I hate not returning calls or emails).
As it has turned out the Blog has worked well – keeping people informed and allowing them to respond either publicly through a comment or privately through an email. Some prefer to phone from time to time and, when I can, I take the call, although that is often limited by things that are happening at the time (Nurse changing IV drip or meeting with the Haem Team etc).
It is very humbling to know that I have so many friends (and family) who are happy to follow my progress and who feel that in some strange way the blog has helped them understand their own lives and situation. It is probably my philosophical musings on topics such as happiness or resilience that have kept people engaged. But whatever the topic I have had some marvellous feedback.
And it is the feedback that has strangely become important to my recovery process. Some friends write just a few words of support yet others will write a page or more of support or analysis of my last blog, relating this to their own lives – and these ones I will read three of four times before being stored away. John Hawkins, Andy Irvine, Geoff Breust and Paul Murray are just a few who have penned long responses – I love them. Others prefer to phone in to let me know how things are going in their lives, which is fantastic, when I can take the call, and the welcome distraction from the medical happenings.
People are surprised that I am happy to share my thoughts as I move through this strange process, but for me it is a way of sharing ideas with others.
I love the feedback that I get, and when I think about it everyone loves feedback. Whether it is a child growing up looking for feedback from their parents/teachers or people in a workplace. Feedback is something that makes a difference and although it takes some thought and energy it generally does not cost much. Studies have shown than positive feedback is often better for work moral than a bonus. Who would have thought?
So for me I am grateful for the feedback and although I don’t consider myself a social media junkie I am happy to read the comments as they come in and are very appreciative that people take the time to do so.
As I’ve said this is an important part of my healing process and certainly keeps me very positive, which I know has a massive impact on how one responds to medical treatment – thankyou!