Day 3 – Tests and waiting

    • More testing
    • Promise of a Hickman line 
    • Interesting conversation with Peter Haywood – Clinical Nurse consultant
      • he noted there were advantages to being in a small regional hospital like Launceston – things can happen fairly quickly without excessive delays due emergencies.
      • just as we finished this discussion, the Hickman line procedure was cancelled due to a backlog of work for the day!
Hickman Line
Fairly common for patients undergoing chemotherapy, a Hickman Line offers direct access to one of the larger blood vessels in the chest/neck compared to a standard cannula in the forearm. This offers advantages for drug/saline infusions and can also be used to take blood samples from. It is essentially a tube implanted through the upper torso and held in place by an internal balloon and some sticky dressings on the external chest. The implantation procedure is usually under local anaesthetic and takes 30-40 minutes.

1. This handy diagram is above my bed so the nurses don’t forget which tube to use!
2. My Hickman line

  • Skin biopsy – cut out the lesions that the Dermatologist at Hamilton Island was not concerned about and test them for leukaemia mutations.
  • Initial results of bone marrow biopsy
    • AMML not just AML
AMML
Acute Myelomonocytic Leukaemia is a type of cancer that originates in the bone marrow from a particular sub-type of white blood cell precursor cells. In healthy people, the bone marrow is the source of all new blood cells and so it is normal for cells to replicate and grow out from this source. In AMML, this normal growth process spirals out of control and the influx of defective cells can crowd out other healthy blood cells and hinder their usual roles in nutrient transport and immunity. Acute means that the cancerous cells build up quickly and, if left untreated, can be fatal in weeks or months.
  • During the week Claire had flown over from Perth and Dougall from USA (having only just arrived back there 3 days earlier for the start of his last year at Uni).
  • It was clear our kids wanted to be with me – which meant so much.
    • We issued jobs to each young adult to keep them busy
    •  Claire was to be in charge of Fashion and Food
    • Lachy in charge of the new Blog and IT requirements
    • Dougall was to decorate the room to be a homely place (given I’ll be here for months.)IMG_0933

4 thoughts on “Day 3 – Tests and waiting

  1. Great photo Hamo!!!
    Don’t have much to say mate, other than my best mate was given 3 months to live 29 months ago.
    To keep a long story short (as you could imagine a roller coaster ride over the 29 months) he is still fighting on.
    I have spoken to my mate nearly every day and most days 2-5 times a day.
    4 weeks ago his doctor was talking to us about palliative care, for the 2 months prior he had been house bound with not even the energy to walk across the street.
    Yet we have just returned from my IWS conference I hold each year in Sydney each year with 85 of my 98 members from all around Australia.
    He was so proud and hasn’t stop talking all day to his wife, (my mum) about it.
    If there is one particular reason why I have felt my father is still alive, is because he as been 100% positive about it all, in the good times and the bad. In saying that, he had been realistic as we have got his business in order as you say.
    He was saying yesterday that he would just love to take mum to the conference next year.
    I’m not sure how long I will have my best mate with me, but what I do know is that I took this guy for granted for a long time, and now my appreciation for him is unlimited.
    The first 3 months from when he was diagnosed was a real blur, in that none of us really knew how to feel nor act.
    We have come to terms with the possibilities, but in saying that, I am sure if the worst where to happen, it wont be easy, but so much better than loosing him without the times we have shared since the devastating news.
    My father (Graham) always has the first laugh, the first joke and the first one to show his love for everyone. His positive outlook has shone over everyone and some times I think he makes us all believe that there is no doubt he will make a full recovery.
    So, as easy as it is to say, (not having been in his or your shoes) stay positive mate, as A LOT of people are depending on you to get better!!! Be quick to, as I have been looking forward to spending some time with you in Japan, and I so want Jamo (My eldest son) to meet Lachy and listen to his thoughts on life and more.
    I will look forward to reading about your ride each day and catching up for a beer or two soon.
    Brad from Leeton:)

    Like

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