It is a strange thing but after quite a few weeks of eating well I have now totally lost my appetite again. It takes me back to the first few weeks post transplant. One of my hospital ‘buddies’ told me that appetite is linked to the level of steroids and as you are weaned off the steroids you lose your appetite. It seems to be the case but I am hoping it won’t last very long – perhaps a few more weeks until I finish up on the cyclosporin.
Last Wednesday I had my 100 day review with one of the lead consultants. The news was mostly positive but a little anti-climactic. There had been some discussion I might be well enough to move to monthly reviews but this is not the case. The review of the 100 day tests showed everything was OK and nothing stood out as being of great concern.
However the medical team have identified that my marrow is ‘flat’ which means it is not functioning in the normal fashion to produce the range of blood cells required. Apparently this is not unusual and is a direct result of the valgancyclovir that I was taking for several weeks – it is a potent drug that adversely affects your marrow!
So for the time being I will be making weekly visits for blood tests and check-ups.
I have also been weaning myself off the sleeping tablet – zopiclone (unsuccessfully) which I have been on since January. Jan is worried I will become addicted! I am down to half a tablet every second night, but last night’s sleep without this help was terrible – maybe I am addicted.
Over the weekend I developed a nose bleed that took 4 hours to resolve – making me think my platelets are dangerously low preventing clotting.
On Saturday I had a day long visit from my good friend Steve Duncan from Sydney who is an avid fly fisherman. Steve showed me how to tie flies (with some help from YouTube) and then took me to the local park for some casting lessons. We enjoyed a nice lunch in town and shopped for a few more necessities.
Today we had a special excursion north of Ballarat to see the Lambley nursery and garden near Clunes, it was a wonderful day out.